Two Children Stricken with Duchenne Muscular Dystrophy The Palm Family Needs Our Help

The Kat Hall Wiffleball Classic is much more than an event of family fun games & entertainment. Our goal is to raise funds for a local family in need. Here’s a look at our 2018 beneficiaries, the Palm Family. This is why we play. Whether you live near or far you can understand the dire need of the Palm Family. They are a family of six including two young boys suffering from Duchenne Muscular Dystrophy (DMD), a disease that has robbed the boys of a normal life and a daughter who has been diagnosed with severe Autism.

Watch their story and see how something as simple as a wheelchair accessible van can dramatically change the lives of the entire Palm Family. These two DMD stricken boys, Jack and Ryan can barely walk on their own and will be permanently wheelchair bound within the year. DMD has a life expectancy of late teens to early twenties. There is no cure.

Thank you to all the teams, volunteers, supporters and sponsors who make this possible each year. We appreciate you all. Learn more about the event at: https://kathallwiffleballclassic.com/

Can't make the event? Please help the Palm Family get the wheelchair accessible Van for Ryan and Jack . Your donation is greatly appreciated. https://www.paypal.me/KWiffleBallClassic

The Palm Family

Lisa and Rob have four children; Alexa (17), Katie (15), Ryan (13), and Jack (10). Katie was a typical child until around 18 months, when we had some concerns. She would not look us in the eye and stopped mimicking words among other things. She was diagnosed with severe Autism around the age of two. In addition, they were concerned about Ryan, as he didn’t walk until 18 months and by the age of three still couldn’t  walk up a stair or curb. After many doctor appointments, they eventually landed at the Neurology Department at CHOP where he was diagnosed with Duchenne Muscular Dystrophy at the age of three. Deciding they needed some good news, and confident Jack was not affected they decided to have him tested to rule out Duchenne - he was diagnosed at the tender age of thirteen months. Lisa and Rob were devastated to say the least. They had no idea how their lives would change or how difficult the years would become, from an emotional, physical and financial standpoint. 

Currently both boys must utilize their scooters to get around. Jack has worsened significantly over the past year, only able to take a few steps on any given day. It is heartbreaking to the family and friends to watch them deteriorate. But it is especially hard for the boys to have their independence taken from them in such a cruel way. And with no cure, we all know what the future holds period. 

Lisa and Rob are currently in need of a handicapped van so that they can get to and from their medical appointments, which are happening more frequently as the boys’ condition worsens. 

About Duchenne Muscular Dystrophy - Duchenne is a progressive muscle wasting disease. It results from a defective gene responsible for producing the key muscle protein, Dystrophin, without Dystrophin cells easily become damaged and die. Resulting in death due to heart and breathing failure. 

Duchenne Muscular Dystrophy is terminal - there is no cure. it is usually diagnosed prior to age five, maybe bound to a wheelchair by twelve.

Most do not survive past their mid-twenties.